UPDATE

Here is Ivee this past Tuesday. She is sitting by herself. It's not for very long, but she is doing it. UPDATE
She woke up Wednesday morning, and the whole right side of her chest was extremely swollen. The fluid had built up in her chest over night, cause the line had completely come out of the vein. The surgeons, who we had still yet to see, came up and realized they had no choice now but to perform some kind of surgery that day. They had us scheduled for next Monday (which we didn't even know was scheduled). So, they decided to put a new one in yesterday. They took her back at 5:15 pm and she was done at 8:15 pm. Daddy stayed with her and she did well that night. So, this morning we were finally discharged from the hospital. She is home now, and so very happy. She could have gone home this past Tuesday, but the line (and no available surgeon... still) kept us there until today. So, the not now so aggravated Foleys are home. We have to go back in next week for our last round of chemo.
Okay, the new news. They will not be able to do radiation in Mobile, unfortunately. We will be going to St. Jude's in Memphis in July for radiation. Mommy and Ivee (and I don't know if anyone else can go) will be gone for 6 to 7 weeks. Two weeks from now, after chemo, we will fly up there for evaluations and consultations. So, life is about to get really crazy for us. God didn't work it out for us here, so we hope there is something that she needed at St. Judes, and God knows what she needs...so once again we are not in control...and his ways are higher than ours. While we are gone, daddy is going to try to get the upstairs started. Hopefully he won't kill himself.
Well, that was a quick note and I'm out.

Don't get upset but...

Okay, so I didn't blog it, but we had to come back into the hospital 1 day after we got out. I just didn't feel like blogging. I feel so repetitive. It becomes mundane. She had another fever, and her central line port is coming out AGAIN. So, surgeons were out last week and today for the holidays. They will be back tomorrow, and we will have another surgery then or Wednesday. Then we'll be back in next week for the last of the chemotherapy. Ivee is just now starting to let us move her without her crying. She is rolling over again, and pushing up, so that is a good thing. So, we'll go back into surgery where she will be in pain again and congested. Oh, the cycle never ends.
Well, I have my days of discouragement, but I never loose my hope. Today I'm just tired of being here, and so is she. There are just so many things you can do in a 12 x 12 room. I'm fine, I'm not going to go postal, I'm just one of those people who likes to be free. I need stuff to do. Laundry and dishes look great right now!

Still here

Well, we are still in the hospital. They wanted to keep Ivee one more night for observation. She is really hurting. If you move her neck, she just cries. My poor baby. I think she is tired of being here too. She just needs to go home. Emmett's back and arm are pretty sore from the accident yesterday, but he says his neck doesn't hurt as bad as he thought it would.

It's Monday

Yeah, it's Monday alright. Ivee had a pretty good weekend until yesterday night. She had a fall from her crib (about 3 1/2 feet). She is okay, but her head is a little swollen and bruised. I think she may be a bit sore also. Emmett had brought the kids up to the hospital to see me, so they were in the room when it happened. Ethan was okay, but Brittney took it pretty hard. So did daddy, cause unfortunatly, he is the one who turned for a moment and didn't put the side of the crib up. He felt so horrible, but she is okay. She slept pretty rough last night, just waking up alot. So, that is last night. This morning Emmett calls me at about 8:15 am. He was driving to work and 1/2 way to Mobile, he was rear ended, and the back of the car is pretty messed up. He says he is fine, but his neck and back will probably hurt him later.
Well, hopefully things will not continue on this way, and Ivee will get to go home today. We shall see. She's crying now, gotta go.

Til Monday

We are stuck here at the hospital til monday. She has to recieve iv antibiotics, and the medical supply place doesn't rent equipment on the weekends. So, stir-crazy has a new meaning. In a hospital room, there is no "room" to "stir"! She is doing much better though. The blood transfusion really helped to bring her strength around, and her color is better. Thanks for the prayers.

Still here

We are still here at the hospital, and probably won't be released until tomorrow or Sunday. Ivee has a bacterial infection on her G-button. So we are fighting it off with the antibiotics. She slept a little better last night, but was very nauseated. The surgeon is coming to change out her button today, and give her a longer one to help stop the rubbing. She is ready to get out of her, and so am I. Well, anyway, that is all.

Ivee update

We are still in the hospital. Ivee has a bacterial infection. Her white blood cell count is up, but her hemoglobin is down. She will have to have a blood transfusion. She is pale and weak, but in good spirits. Pray all goes well. She should feel alot better once she gets the transfusion.

Prayer Request

Ivee had to be put in the hospital yesterday. She had a fever as high as 103.6. She has an infection around her feeding tube. They have put her on 3 different antibiotics. They are doing cultures to see what kind of infection it is. She is in alot of pain, and the fever goes away with tylenol, but comes right back when it wears off. There is also a knot that has come up on top of her head near her old drainage tube scar. They took xrays to see what it is. Well probably have the results on that tomorrow.
We also met with the radiologist, Dr. Wynn. He told us what he wants to do for Ivee's radiation regimen. We would start immediately in July when the chemo and 6 month MRI are done. Radiation would be 5 days a week for 5/6 weeks. With Ivee's age, they will need to sedate her for each treatment. This poses a problem. Radiation is done one the USA campus in the cancer clinic. Since babies are not radiated hardly ever, there is no one there that does anesthesiology. Also, there cameras aren't truly set up to watch her as closely as needed. Dr. Wynn is trying to see how we can fix both of these problems. If radiation were done in a hospital or next door to one, sedating her wouldn't be that hard, but in this case someone would have to come everyday of the week and do it. He is trying, but it may not happen.
If it doesn't, Ivee and I will have to leave for 6 weeks and either go to UAB or St. Jude's, leaving Emmett and the other two kids here. We would also (probably) have to find a place for us to stay while we are there. We are lifting in prayer that God will provide a way to keep Ivee here and have the radiation done. Dr. Wynn is still working on it, and will hope to know what needs to happen by mid June. Please, lift this up in prayer with us. Both of the radiation and for the illness she has right now. That you and God bless.

a WHOLE Jar

Well, Ivee just ate a whole 2 oz jar of applesauce. You just can't feel her fast enough. She is doing so well. I'm going to have to find a way to get the film on here.

No Confussion...

Okay, cause of an email I recieved, I think I have confussed some people. The MRI back in April revealed no Visible signs of cancer. Now, this is to say that the rest of her tumor has gone, but there may still be cancer cells. Ivee's cancer is of the cells of her ventricles. So, anywhere that her ventricles pass through her head, her cancer can grow and appear. The doctor's (oncologist) have shown us the data. If we were to stop treatment after this last dose of chemo, Ivee (according to statistics) has a 16% of survival. With radiation treatment, it will increase that percentage to 87%. So, we are still going to chemotherapy treatments. We'll have anther MRI at the end of June. We have an appointment with the radiologist of oncology at USA campus next Tuesday to discuss her plan. It will probably be radiation for 6 weeks, 5 days a week.
So, I hope this clears things up. Ivee is not out of the woods. Her cancer is aggressive, and in many has come back later.
Now, with all that said. I still know who is in control and who the ultimate healer is. If God tells me straight out in some way not to do radiation, then Emmett and I will listen, but we will not be foolish. I know you all know what we mean. Well, I have rambled enough. If anyone has any questions, please ask. I would be happy to answer any.
Thanks for the prayers and we love you all. Hope and Emmett

IVEE'S Birthday

Well, the day is here. Yeah!!! We are in USA C&W right now, and daddy was singing happy birthday, and as soon as he finished, a flood of hospital staff (who have been with us along this journey) came in singing happy birthday and bringing all kinds of presents. Surprisingly, Ivee didn't cry. She smiled. Her eyes look so tired, but she is still a happy girl. Daddy and I are so full of emotion today.

In accomplishments, Ivee is now saying dada along with saying mama. She is turning over "like crazy!" She gets up on her knees and tries to crawl, but it is more like pushing her head along. She is SOOOOOO close to sitting by herself, but she is lazy, and she won't keep her hands down to steady herself. Her balance is still a little off. We are so proud of her accomplishments.

Doing fine

Ivee is still doing fine. She seems to be getting smarter everyday. Making cute new faces, crying to get what she wants, typical one year old stuff. I can't believe her birthday is next week.
Right now she is having a problem with her g button still. It has what they call "over growth". It is very tender and hurts alot. So, anytime I have to put her feeding tube in the button, she just cries. My pastor's dad is in his 80s and also has the same button and tube. He also has over growth. He cries every time they have to do it too, and he says it hurts horribly, so now I know that it hurts her alot. The surgeon will see her next week while we are in patient. Hopefully they can do something for her.