Ivee this week

Well, Ivee is not feeling so well today. I blieve she has a cold. The nurse called and said that her lab results came back low. Her white blood cells are down, and so is her blood sugar, as well as other areas. So, we won't be getting out much right now uintil they come back up. Pray for sanity, and for Ivee to become well again. WSell, that is all the time I have at the moment. I'll update when she has another lab test done on thursday.

another milestone

Ivee had a pretty good day today. She is still really congested, but in a great mood. Today, she reached another milestone. She rolled over and pushed herself up. She did this a few times. She could do this before the surgery, so as of now she is where she was at 7 months. The next step is sitting up on her own. I am so proud of her. It seems that sometimes the physical therapy just isn't doing anything, then all of a sudden she just does something on her own. She is amazing.
The nights are still rough, but once the congestion is gone, I believe it will improve.
I have more pics and video. Hopefully I can get something on here soon.

Sorry this is late

Sorry I am late blogging, but it has been a long week. Ivee was discharged Wednesday for the night. We came outpatient yesterday and today for chemotherapy. The treatments are pretty hard this time. She (and her parents) don't sleep well at night. She is really nauseated most of the time. She is constantly gagging. Her potassium and magnesium are low, so she is taking those extra this time. Emmett and I pray that the nausea will end soon. It is a good thing that these were not our first chemo drugs, or I would have been depressed even more of the get-go. The first two months, she did really well. So now I know what to expect the next three months of treatment...if they are needed. She will have another MRI in three weeks. We will then know if there has been any change with her tumor. Physical therapy begins again next week. She didn't do too well the last two times she had it. It is a big struggle for her. Pray that she will feel well enough to try to start back to therapy and do well next week. She is still improving, but it would be great to see her hold her head up while lying on her stomach again. And we would be thrilled if she could sit up and maybe even crawl by her birthday, which is less than two months away.
Well, I know I have rambled, and that some of what I said may not make sense. It's cause I'm dealing with a huge case of sleep deprivation. Thanks for the comments and prayers. We enjoy them all. And as we all know...well those of you who read the comments also, that Paula always has something worth reading. Even if it is corny. Love it Paula.
PS. Ivee did break free of baby jail. She'll give you all the details later.

Day 1 for real...

Well, today was a long hard day again. Ivee went into surgery at 8:30 am. We got to go back to the recovery room to see her about 11:20 am. She was not happy to be in there. I picked her up and held her, and she calmed down and went to sleep. I just felt like we were starting all over again. She has come so far, and then here we are again...intibating her, causeing conjestion, IV holes, knew stiches and proding...I just didn't want to start it all over again. She has had a long day. She's on Chemo now and it will go for 6 hours, which is til 12:30 pm. She wants to be held, but there are too many tubes hooked to her right now, so it is really hard. I have to go now. She is crying. Pray.

I know...

Two post in one day. Crazy. Well, the film came back, and Ivee will have to go back into surgery again tomorrow morning. The hickman line (chemo Line) has drawn back 5cm. That is just too much. So they either fix the one in there, or give her a new one. They tried to get an IV on her earlier for surgery, but after 6 blowouts, they stopped trying. They'll let anesthesia try it in the morning. Please, pray they find a vein that won't blow. She's okay now, but of course, now when anyone new walks in the room, she cries thinking they are going to hold her down and poke her again. She is watching Nemo now, so all is well. Keep praying and God will keep listening and answering. You are all loved and appreciated.

Day 1 of month 3, and I love my sweet tea

Well, this first picture is not the hospital. It was taken this weekend. We went out to eat, and my papaw is giving me sweet tea after I grabbed the cup from his hand and tried to get it myself. I was just trying to be helpful. But NOW I am being punished for my offense. I am now being held in "baby prison." I devised a plan to look cute and cuddly, but the big people...I believe I am learning that one of their names is mama... well, they are not falling for it. I am devising a way to get out now, but so far my attempts have failed. Stay posted for future plans of escape. Hopefully the big people will go to sleep tonight, and I can make another attempt.




Once again Ivee wanted to address you all. She has such a vivid imagination. We are in the hospital again. Right now we are waiting for xray and a surgeon to look at the film and let us know if her central line is okay. It has moved out quite a bit since the stiches came out. I'll keep you informed when we get more information. If the line is okay, we'll begin chemo today.

Ivee Update

Ivee is doing well. Monday she had a swallowing test. She is swallowing much better. They gave us permission to give her thin liquids. Her swallowing is weak, so we'll have to work with her to strengthen it. She still loves sweet tea. We'll try to get her to drink apple juice and other stuff, but in the end, sweet tea wins out. We even gave her chocolate milkshake. It just wasn't what she wants. She's such a southern girl.
Also, she had a hearing test on Tuesday. There is no problem with her hearing organs. They are clear and in tack. She passed the echo test, which tells us the organs are working fine. One of the chemotherapy drugs she goes on next week can damage hearing, so we needed to see where her hearing stands before the drugs. We'll go back in 3 months to see if there is any damage before she has a dose of the same drug again.
She is still improving physically. On the 21st she'll go for a 2 hour visit to the USA development center, to see where she ISN'T physically. We know she is really behind, but everyday she does something that makes me believe in a full recovery.
Well she is fussy, gotta go. Oh, she is getting her top teeth. The right one broke through, so they are bothering her. Once they come in really good, we'll get pics.

Blood Sugar

I have just a minute. But, I wanted everyone to know that her blood sugar is up. It is 76. That is pretty good. Her other levels were pretty good also. The nurse said somethings were high or low, but over all shee looks great. Thanks for the prayers.