Blood Sugar

Friday, March 02, 2007

Blood Sugar

I have just a minute. But, I wanted everyone to know that her blood sugar is up. It is 76. That is pretty good. Her other levels were pretty good also. The nurse said somethings were high or low, but over all shee looks great. Thanks for the prayers.

2 comments:

Anonymous said...: Praise the Lord! God is so good.
love, Anna & Bob; Saturday, March 03, 2007 11:32:00 AM
Anonymous said...: Hope - I tried to blog the other day at work and it would not go through. Maybe it was a good thing cause when I am at work my thoughts are a little scattered. I have been thinking of Ivee and praying for her when she comes to mind. I just think of the scripture that says "I am fearfully and wonderfully made" (Psalm 139:13-18) and I believe that true of your precious little one. God knew her while in the womb and He knows perfectly well her every need (as well as the needs of her mommy). I am so glad to hear of her improvements. I just trust that they will keep coming. My friend that is agreeing in prayer with me about Ivee came to work and shared something with me - she had a vision a while back that I didn't share with you cause I thought you might think me freaky however I think you might like to hear it now. She had this vision of 2 adult hands breaking eggs over a baby and then taking communion together and spitting it on the child's head. I know I know... Your thinking what I was thinking - huh? I told my friend I can't tell this mother to break eggs over her child who has a healing wound on her head. Well...when she came to my office last week she explained that someone had told her that the eggs meant that the yoke of bondage was broken and the communion meant that it was already done - Jesus already paid the price and whatever we need is done. I thought that was a GOOD WORD that she got for Ivee. She shared with me the story of Hannah and how Hannah had prayed and prayed for a child and grieved for lack of an answer for years. Long story short -(I Samuel chapter 1) - Eli tells her "Go in peace, and the God of Israel grant your petition which you have asked of Him". So Hannah goes and "her face was no longer sad." She took it in faith that her prayer was answered and IT WAS - she had a son. So...for your sake I will be sad no more. I am going to find as many corny jokes as I possibly can - my Pastor is loaded with them - and share them with you as often as I can and just trust God that our prayers have been answered for Ivee. Speaking of corny jokes - Aunt Karen forwarded your funny soap box guy to me the other day and I needed that laugh. Laughter is really good medicine. I am so tired - Macky was up last night with her teeth and I feel like a typing zombie. Many blessings to the foley family!! Paula Casallo; Monday, March 05, 2007 10:20:00 PM

Ivee's story in SHORT...As if....

Ivee is a tough little girl. And with our help and by the grace of God, all will go well. We pray for a complete healing, and we know that our God is big enough...He is the Great Physician.

Story: On a routine Monday, December 18, 2006. I was missing work and taking my oldest daughter to the doctor cause of a stomach virus. Stopping at a grocery store on the way, I left the oldest in the car for a moment and ran inside with Ivee. I put her car seat on top of the grocery cart as so many of us mom's do. Leaving the store, I turned for a brief moment to throw something away. I turned around just in time to see the entire car seat fall face down on the concrete. I flipped, as any mom with a 7 month old falling face first would do. I arrived at the ER in record time. She already had a huge knot rising on her forehead. As they (eventually) started a CT scan, I felt God speaking to my heart. In all but audible words he told me she would be fine, but that we would find something else, that this was why she had fallen, so He could reveal it to us. So, as I watched from the tech room, I saw something that even to me, a non-trained observer, knew was not suppose to be there. A friend of mine was the radiologist there, and he confirmed, also by doing an MRI, what I suspected. I was at peace in spirit cause my heart had been prepared...but not okay. My husband was working out in Texas and would have to drive more than 7 hours to come home, not knowing what was happening, but just that she fell. Ivee was transferred to a local children's hospital in Mobile. That night, Dr. Martino consulted, and would run an MRI the next day of his own, and perform surgery on that Wednesday. On December 20, after 5 hours of surgery, all was successful, and Dr. Martino removed 98% of what he knew was an egg sized malignant tumor, later diagnosed as Stage 3 Anaplastic Ependymoma. The remaining 2 cm was on her artery next to the spinal chord.

Deficits from initial resection/treatment: Ivee had many deficits due to the tumors removal, even though he was able to leave her nerves in tack. Her right eye was severely crossed. Her vocal chords were paralyzed (left has regained use). Her hearing was affected (loss at 2000 hz and high frequency sounds). Hearing aids received June 6, 2012 at age 6. Have already hear improvement in F, S and ending sounds in 2 days time! Her balance was never truly restored, and she has left side body weakness. After 30 days (including Christmas) we were allowed to take Ivee home. She had 6 months of chemo and then 33 treatments of radiation at St. Jude.

Procedures/surgeries:

1.) Tumor Resection (12/06) – Anaplastic Ependymoma

2.) Gbutton placed for eating. (01/07)

3.) Nissen fundiplication pyloroplasty done (wrapping of throat & stomach) (01/07)

4.) Chemotherapy Begins (01/07)

5.) 5 central lines placed (many fell out on their own) (01/07 – 05/07)

6.) Port placed at St. Jude (06/07)

7.) Chemotherapy ends (06/07)

8.) Radiation (06/07-08/07)

9.) Rare scar tissue formation in the brain removed (09/08)

10.) Shunt Placement (10/08)

11.) Shunt revision/replacement (02/10)

12.) Hip Displaysia surgery – Dega Osteotomy {Not tumor related} (10/10)

13.) Reoccurance - GTR {Gross Total Resection} (02/11)

We were shocked (as was the doctor) when her Jan. 2011 scan showed a reoccurance. It was on the same artery where the orginal tumor was left behind. GTR was done on February 18^th with much success. 2^nd dosing of radiation began March 28 and ended May 6, 30 doses.

14. Begin 2nd dose radiation on March 28 (30 doses) Ended on May 6, 2011.

Improvements:

1.) Right eye is still weak, doesn't require glasses yet. Patching the good eye to strengthen the right one.

2.) Right vocal chord is still partial paralyzed. In Fall of 2008 , to the doctor's dismay, discovered she has received movement again in right chord (update: Since resection in 2/11, Right vocal chord is completely paralyzed, no movement now)

3.) Still G Button feed. Cannot eat much by mouth. She doesn’t have the drive to try to eat, but we are treating her with an appetite enhancer. She has been approved through Modified Barium Swallow Test.

4.) Balance is still and issue. Has improved over the years. Uses a walker and wheelchair.

5.) Has learned to stand (assisted) for a few moments by herself and take some steps/usually across a room (May 2012). Uses a walker VERY WELL!!

6.) Currently watching a paraesophageal hernia of the fundoplication. No surgery required at this time.

7.) Non-cancer related surgery due to hip dysplasia in Fall of 2010. Has improved her balance and slipping out of socket.

Currently:

She is doing very well! She attended K5 full-time with a personal aid (might repeat K5). She is very smart and attentative. She used her walker often throughout the day and is learning to take independent steps. She takes a little bit of something to eat everyday now instead of once a week! She has learned to drink larger portions at a time. Enjoys Hippotherapy (horse therapy). Is extremely observant, caring and just down right funny!

The Foley Family - Trusting in God at ALL Times!!!

About Me

Friday, March 02, 2007

Blood Sugar

2 comments: