Sleep study

Two words: Hated It! 

She did, and who can blame her! Look at all these wires! 

And it took over an hour to get it all done, then we moved her, then we had to fix leads that weren't working. She only managed to disconnect the probes in her left leg while asleep. I think we are going to get much needed answers from all if this, hopefully by tomorrow. 

Our night in Memphis

Today has been a long, full day of appointments here in Memphis. 

We began our day with Pulmonology, where Ivee's congestion has been consistent, we confirmed her O2 saturation just doesn't want to stay in the 90s. The doctor added chest film, upper GI films, and an echocardiogram. In eye clinic we found her vision has not gotten any worse, really. New glasses are needed, but looks like eye surgery is not even a thought now. 

The chest X-ray must have been clear, but I'll find out for certain tomorrow. He upper GI showed no reflux, same as the one she had two years ago. Don't know how the echo looked, no results yet. Hoping to find out all those results tomorrow. ENT doc and pulmonologist are in some agreement about our next steps with Ivee. A determination will be made after she completes her sleep study tonight. 

And that's where we are currently, in a room in he sleep clinic at Le Bonheur Children's. We will see what is I store for Ivee after this. It is a lot to discuss and take in, and I don't really want to go into detail until I have Strong facts. 

So, I will sleep in the room next to my girl tonight, praying that she sleeps as she normally does, and we get a clear understanding of her sleep patterns, and her oxygen saturation. 

We will return home tomorrow after we drop by the Jude to see the nurse practioner. 

Thursday I have a pre-op appointment for my surgery next Tuesday. Emmett is currently in Texas and will be home this weekend. The St. Jude Give Thanks walk is Saturday, and I have to prepare the house for the realtor to hold a open house showing on Sunday. 

Pause.....just breathe! 

Thank you, friends, for checking in on us. I'm not going to proof this post, so sorry for any mistakes. Have a great night! 

Big News and more

First, let me just say. I am beyond blessed with amazing people in my life. Many I have never even met, but they are just as important as those I can physically touch or personally talk to. They all have supported our family through comments, checking in, and praying for us. Many have also donated to my Give Thanks for St. Jude Walk in honor of my Ivee. 

I am proud to announce, Team Ivee has surpassed its initial goal of $1,500.00. We are so thrilled we are pushing for $2,000.00 by November 23. This  would be a huge, amazing blessing for the families of St. Jude and anyone affected by the hospitals research! This placed has tried and many times succeeded in saving these children's lives, my Ivee in that surviving statistic. Her battle is not over, however, and I must continue to fight for funding so she can continue to fight to live here on this earth. If you are feeling thankful and giving, how about supporting my efforts and giving a tax deductible donation to St. Jude. It will mean the world to a family in need, especially during the holiday season. We spent our first Christmas and Ivee's 1st birthday in the hospital. These families have enough to worry about than financial problems. 

If you would like to give online, click this link. ST. JUDE GIVE THANKS< TEAM IVEE. 

If you would like to mail a check to me, written out to St. Jude Childrens Research Hospital, Email me at hopealations@hotmail.com and I will give you instructions. Checks need to be mailed by November 19th.

Now....the BIG NEWS!

The Foley Family is making a move. Emmett has accepted an offer in Houston, Texas, and we are excited and anxious all at the same time. The children and I won't be moving out immediately. Well, here is my post from Facebook, so I don't have to type twice.

"Well, I can officially post it. As I sit here in the dark, because the transformer exploded 20 minutes ago, I am wondering at what all has transpired since last Thursday. In a whirlwind of quick happenings, the Foley family is preparing, with the Lord's help, to move to Houston, Texas. To make a long story short, Em and I have felt we were being prepared for a big change, for two years now. We put the house up for sale 3+ weeks ago, just telling God he can do what he needs. We could sell it or not. Then Emmett got a phone call out if no where last Thursday and in less than 48 hrs was offered a job. When he was unsure if he was doing what he was suppose too, God kept making things happen that screamed, yes, this is me opening the door. Em will be moving in mid November. The house hasn't sold, but the kids and I aren't leaving until at least after January 10 when Brittney completes her high school education. We will see what The Lord has in store for this house. We are praying for amazing people to buy it so our amazing neighbors will like them! I will miss this house, not as much as Ivee, though, who has only known life here. Many memories, good and bad, and a battle for her life was fought within these walls, twice. So, now I ask for new prayers from you, friends."

We plan on keeping all our commitments here at home. Ivee is the queen of the St. Jude Mari Gras Ball February 8th. We are inviting people to buy tickets and participate!!! It's going to be an awesome night. For more info click here. 

Brittney will have Prom in April and Graduation in May. I'm looking at this house full of furniture and stuff, and I am a bit overwhelmed. God, however, is good and I know that I'll get it all squared away one way or the other. That or it's all going up for sale!