Just Putting This Out There

Friday, October 24, 2008

Just Putting This Out There

Let me say first, I am not looking for financial donations. Just putting it out there if you have any!
The kids, all three, and myself are going to have to go buy new clothes soon with the fall / winter weather coming. If you have any hand-me downs, we'll take them. I'll put our sizes and the kids ages on here (sometimes age makes a difference in what a child will and won't wear...pre-teen if you know what I mean!) Ivee is 2 years old and in 24 months - 2t. Brittney is 12 years old and a size 10/12 in s. Ethan is almost 9 years old and a size 10/12 in boys, and I am a true 8/10 (not on the small size). Also, if you have it, Emmett is a 36/30 in pants and a size m to large in shirts.
Like I said, I am not looking for financial contributions!!! I mean that. But, if your like me, you may have bags and bags of old clothes, and your trying to find someone who maybe could use them. (Luckily for me, my sister has two s slightly younger than my s, and my friend Vicki gets Ethan's old stuff).
Now I just have the task of see what we all really have and what is really needed.
If you do have some, just email me (or comment with your name and email address/phone...if I don't know how to get a hold of you).
Thanks for keeping in touch!

3 comments:

Anonymous said...: Hey Hooe,
I hope your weekend is good. I know I will have some clothes that should fit Brittney. I may have some to fit Ivee. I will ask my sister about clothes for Ethan, b/c Jacob should have some he's outgrown. My email address is jamia.presley@jdcc.edu. Just let me know where I can drop them off. God bless you all! Squeeze little Ivee for me. Love, Jamia; Saturday, October 25, 2008 8:07:00 PM
mcknightclan said...: Hope, I know I have some things that Ivee should be able to use. I also have some size L,II 10 slim jeans that Jillian can't wear yet, that might fit Brit. Let me know if you think these will work 599-3848.
I will be getting some stuff together for Ivee and waiting to hear about Brit.
Sorry E, nothing for you.
April; Tuesday, October 28, 2008 12:51:00 PM
Anonymous said...: Hope, You might not know me but we go to FFF and Ivee is in Claire's class at school. I have some 2T/24clothes. A lot of them are strictly play/preschool clothes with some sweaters and jackets. Call me and I can leave them at the school and you can go through the bag. Leave what you don't need or doesn't fit. I have another friend that I pass on to as well. 621-3848/421-1177 or divinggal@hotmail.com; Wednesday, October 29, 2008 9:22:00 PM

Ivee's story in SHORT...As if....

Ivee is a tough little girl. And with our help and by the grace of God, all will go well. We pray for a complete healing, and we know that our God is big enough...He is the Great Physician.

Story: On a routine Monday, December 18, 2006. I was missing work and taking my oldest daughter to the doctor cause of a stomach virus. Stopping at a grocery store on the way, I left the oldest in the car for a moment and ran inside with Ivee. I put her car seat on top of the grocery cart as so many of us mom's do. Leaving the store, I turned for a brief moment to throw something away. I turned around just in time to see the entire car seat fall face down on the concrete. I flipped, as any mom with a 7 month old falling face first would do. I arrived at the ER in record time. She already had a huge knot rising on her forehead. As they (eventually) started a CT scan, I felt God speaking to my heart. In all but audible words he told me she would be fine, but that we would find something else, that this was why she had fallen, so He could reveal it to us. So, as I watched from the tech room, I saw something that even to me, a non-trained observer, knew was not suppose to be there. A friend of mine was the radiologist there, and he confirmed, also by doing an MRI, what I suspected. I was at peace in spirit cause my heart had been prepared...but not okay. My husband was working out in Texas and would have to drive more than 7 hours to come home, not knowing what was happening, but just that she fell. Ivee was transferred to a local children's hospital in Mobile. That night, Dr. Martino consulted, and would run an MRI the next day of his own, and perform surgery on that Wednesday. On December 20, after 5 hours of surgery, all was successful, and Dr. Martino removed 98% of what he knew was an egg sized malignant tumor, later diagnosed as Stage 3 Anaplastic Ependymoma. The remaining 2 cm was on her artery next to the spinal chord.

Deficits from initial resection/treatment: Ivee had many deficits due to the tumors removal, even though he was able to leave her nerves in tack. Her right eye was severely crossed. Her vocal chords were paralyzed (left has regained use). Her hearing was affected (loss at 2000 hz and high frequency sounds). Hearing aids received June 6, 2012 at age 6. Have already hear improvement in F, S and ending sounds in 2 days time! Her balance was never truly restored, and she has left side body weakness. After 30 days (including Christmas) we were allowed to take Ivee home. She had 6 months of chemo and then 33 treatments of radiation at St. Jude.

Procedures/surgeries:

1.) Tumor Resection (12/06) – Anaplastic Ependymoma

2.) Gbutton placed for eating. (01/07)

3.) Nissen fundiplication pyloroplasty done (wrapping of throat & stomach) (01/07)

4.) Chemotherapy Begins (01/07)

5.) 5 central lines placed (many fell out on their own) (01/07 – 05/07)

6.) Port placed at St. Jude (06/07)

7.) Chemotherapy ends (06/07)

8.) Radiation (06/07-08/07)

9.) Rare scar tissue formation in the brain removed (09/08)

10.) Shunt Placement (10/08)

11.) Shunt revision/replacement (02/10)

12.) Hip Displaysia surgery – Dega Osteotomy {Not tumor related} (10/10)

13.) Reoccurance - GTR {Gross Total Resection} (02/11)

We were shocked (as was the doctor) when her Jan. 2011 scan showed a reoccurance. It was on the same artery where the orginal tumor was left behind. GTR was done on February 18^th with much success. 2^nd dosing of radiation began March 28 and ended May 6, 30 doses.

14. Begin 2nd dose radiation on March 28 (30 doses) Ended on May 6, 2011.

Improvements:

1.) Right eye is still weak, doesn't require glasses yet. Patching the good eye to strengthen the right one.

2.) Right vocal chord is still partial paralyzed. In Fall of 2008 , to the doctor's dismay, discovered she has received movement again in right chord (update: Since resection in 2/11, Right vocal chord is completely paralyzed, no movement now)

3.) Still G Button feed. Cannot eat much by mouth. She doesn’t have the drive to try to eat, but we are treating her with an appetite enhancer. She has been approved through Modified Barium Swallow Test.

4.) Balance is still and issue. Has improved over the years. Uses a walker and wheelchair.

5.) Has learned to stand (assisted) for a few moments by herself and take some steps/usually across a room (May 2012). Uses a walker VERY WELL!!

6.) Currently watching a paraesophageal hernia of the fundoplication. No surgery required at this time.

7.) Non-cancer related surgery due to hip dysplasia in Fall of 2010. Has improved her balance and slipping out of socket.

Currently:

She is doing very well! She attended K5 full-time with a personal aid (might repeat K5). She is very smart and attentative. She used her walker often throughout the day and is learning to take independent steps. She takes a little bit of something to eat everyday now instead of once a week! She has learned to drink larger portions at a time. Enjoys Hippotherapy (horse therapy). Is extremely observant, caring and just down right funny!

The Foley Family - Trusting in God at ALL Times!!!

About Me

Friday, October 24, 2008

Just Putting This Out There

3 comments: