About Me

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Born in Atmore, United States
Wife & Mommy. I have a wonderful husband who loves me deeply and three great kids. I believe in my Creator who guides me everyday. My favorite interest are stage/theatre, music/singing, antiques and art.

Wednesday, October 28, 2009

Update

Sorry I'm late getting this up. We got home from Memphis and our modem had crashed. Once again, I have internet back.
Ivee did well at her check up. She used her walker for the therapist, which is a big thing. We are "uping" her feeds, her weight has been down. She came out of the MRI fine, and within 20 minutes was her grouchy self. She is always like this. The neurosurgeon said that everything he sees is still stable. Her brain stem is still in the same position with the same pressure on it, but as long as she is moving forward (no matter how slow that may be) then she is okay. We just need to watch for any regression, that would be a sign of an issue with the brain stem.
Ivee has a speech therapy this Thursday. Praying that they will be able to help her and give us some more insight. Hopefully she will eat for them. She loves to walk, but with someones hand most of the time...not with her walker.
Her comprehension and vocabulary is still expanding. She loves school. She has discovered that playdough is an okay thing, so she wants to play with it all the time. She is always wanting to color. She reminds us to pray at every meal, and she leads the pray at meal time and bed time. Not sure what she is saying, but she just wants to talk to Jesus.
Remember to pray for Johnny Sileno and his family (he is in our links column). They found a cloudy place on his last MRI. He will be returning to St. Jude in a few weeks for another scan.

Monday, October 12, 2009

The Feeding and the eyes

So, feeding clinic was a bust. She didn't cooperate at all. Surprise, surprise, surprise!!! They did give me some helpful advice, just to keep my sanity, and they are going to assist in getting us more help.
The eye doctor saw her today. She didn't do so well at that visit. SO, we are going to continue to patch her left eye, and I will work with her here on a site chart to see what she is up to...for the next 4 weeks.
We leave for Memphis on the 20th for her next check up. Taking everyday....one day at a time.
Thanks for checking in, and I'll give more detail and updated pictures soon.

Tuesday, October 06, 2009

Prayer for Thursday

Ivee has feeding clinic this Thursday in Mobile. They are suppose to access her and she what I can do to help her eat by mouth. The only problem....you can't make her eat!!! How do you convience a 3 year old that food is good. That having a g button is not normal. She even tries to put her own tube in sometimes. I try to be patient, but she doesn't cooperate in the least. She will love something for three days, and then after that won't even try it again. I try not to get frustrated, but I don't know if I should force her (like we sometimes have to do, with all our children) or if we should just continue to just support her. I guess there is no right or wrong way to do this. I love that fact that she is strong, cause that is what got her through all this in the first place, but that stubborn will of hers will often get in her way to progress.
Continue to pray for the walking and eating. God bless.